Showing posts with label Cystic Fibrosis. Show all posts
Showing posts with label Cystic Fibrosis. Show all posts

Thursday, April 7, 2011

..playing catch up..


So it has been about a year since I have turned on this blogging thing. A lot has gone down, I've moved, been laid off, gone back to school, discovered coupons and so much more.

Let's back up...


gee, I wish we had this button for life it could make things a heck of a lot easier.

June 2010 we moved in with his parents to save some money faster so we can get our own house. We are still working on that. I was also laid off, and decided hey, lets make an attempt a finishing that associates degree I began 7 years ago. So I did that all summer and fall. Enter 2011, still with his parents and still laid off. Not much has changed since then, job hunting is on hold due to my being a Grand Juror for this term, fun stuff not much more to say about it other than that.

The Great Strides Walk is coming up, and big props to everyone who has registered and working on their fundraising! I could not be happier about the support we are getting this year, and a lot of that going to Nicole for helping us out
on her super awesome blog ((not sure how to link it here but she is over at flipflopsandcombatboots.net go give her some love)). We have a pretty good team lined up and we are hoping for no rain this year!

Still fighting on making CF stand for Cure Found each day. I find ways to connect with the CF community pretty often, and spread the word to those who aren't aware of what CF is and its need for a cure. Isabelle is going to be 4 on Sunday! I cannot believe how fast she grows.

Married life is just that, married life. Working on day 481 today and loving every minute of it!



this is the most recent photo of the Hubby* and I. Isn't he adorable!

Oh and the Bruins just may find their way to the Stanley Cup this year -- told ya!


Stay tuned
&
::breathe::
<3



Thursday, May 6, 2010

Two Days until Great Strides walk!!

'CLICK'

Help us make CF stand for CURE FOUND!! Make your donation today!

Tuesday, May 4, 2010

Great Strides Walk....Zumba!!

Well the Great Strides walk is this coming Saturday. We have got everything ready to go (so far), walkers are in order with their walking shoes ready to go, donations are coming in, t-shirts have been donated. I am eager for the walk, its only a short few miles but the cause is so empowering! I feel like we've done a successful job thus far and I just hope the weather keeps nice for the walk. I'd hate to not have the kids be able to join us in their strollers because of the weather. Ran into some glitches with the Dough Raiser as a few people felt that the totals were not allocated properly, so I mentioned it to the person who organized it and it just seems to be snowballing into what I did not want, a chaotic mess. The cause seems to get lost in translation, especially when people talk about money. I intend to let it go, and move forth. Still haven't gotten the tattoos yet, saving our pennies and waiting for his to finish being drawn. Oh yeah, we're all getting tattoo for CF, so when some one asks hey whats that tattoo for (cause all mine have a reason minus a few for fun ones, but for fun is a deal too, right) we can tell them about CF, how vital the research for the CURE is and hopefully they take us to heart, and join us in making CF stand for CURE FOUND.

Zumba class one was this past Saturday, wow! A work out a good one, and FUN! I am taking a class tonight because of the walk this Saturday. Also looking into a second class weekly to get into, it was that good. Been on the healthy kick this year, so far yet to see any results, but I am doing it so when I have rug rats I can chase them around without being winded and play all the games and sports they want to. I wish the husband would join the band wagon with working toward bettering himself for the future children (we don't have and won't any time soon, but why not start now). So salads, and fruits, tons of veggies and working out. It is fun, not even hard, it is just commitment, and a lot of it. When it is so easy to lounge on the couch with a bag of chips and bowl of dip, you've got to focus. As usual I am my biggest fan and toughest critic, I'm still working on that one but I think I like it so I don't intend to change it.

Friday, April 30, 2010

Dough Raiser for Cystic Fibrosis

Isabelle with Tory enjoying their chocolate milk at the Dough Raiser,
patiently await their pizza!



So yesterday I held a Dough Raiser to benefit the Cystic Fibrosis Foundation, the turnout was great, our bill alone was nearly $500, so I am confident that we succeeded in raising the 20% of meal sales. All those who came out to UNOs (ps UNOs thanks for hosting!) a sincere thank you, you don’t even know what it means that you were able to eat for a cure with us!


Cystic Fibrosis is a devastating genetic disease, which right now we don’t have the ability to cure, but we can and one day we will! CF is a giant part of my life, as my friend Isabelle, a beautiful three year old has CF, and I hope that one day we can do more for her than treat but cure her! And with her, so many other people who have CF. Before I knew Isabelle, I had known that CF was a disease, but did not know much more not anyone with it. Then two years ago, I met Isabelle and I will forever fight to help find a cure for CF. I never thought I would be as inspired as I am by her, she is so amazing, and incredibly smart! Her parents are wonderful people, and the three of them are now family to us all. I’m blessed to have met such amazing people.


So I am walking next Saturday with the Great Strides walk, down at Revere Beach – the turnout is anticipated to be good and I am hoping for great weather, a quick 5 mile walk down the boardwalk in the morning. So far I’ve raised $365 toward the CF Foundation, and with the Dough Raiser I hope that we were able to raise at least another $300! In addition to this walk we are doing, Isabelle’s father rides a 250 mile (yes I said 250 mile) motocross event every June to benefit the CF Foundation, and last year we were able to raise $400 for that at my job site, a construction site, full of hard working sweaty men donated $400 to the CF Foundation, I was beyond touched.


I guess it’s hard to realize the need for research, treatment and a cure for something until you’ve associated a face with it, for me I have associated a lot more than a face, it’s my family, and I don’t give up on family. So again, thank you to everyone who helped! For more information on CF, you can visit, www.cff.org. Our team is Breath.Believe but on May 8th we will walk as Isabelle’s Bibbidi-Bobbidi-Boo Crew* with pride and confidence that together we can and will make CF stand for CURE FOUND!